ShePrep

Coping With the Emotional Weight of Trying to Conceive

In a Fertility Network UK survey of nearly 1,300 patients, 47% reported feeling depressed often or all the time and 4 in 10 reported suicidal feelings. Separate research found 41% of 590 respondents met criteria for PTSD or complex PTSD. NICE recommends counselling before, during and after treatment, whatever the outcome.

This is measurable, and it has been measured

If trying to conceive is taking up more of your head than you expected, that is not a personal failing and it is not unusual. It has been surveyed and published, and the numbers are worth seeing because they replace a private suspicion with a documented pattern.

Fertility Network UK surveyed close to 1,300 UK fertility patients, working with Dr Nicky Payne at Middlesex University London. The findings:

  • 47% experienced feelings of depression often or all of the time.
  • 83% felt sad, frustrated and worried often or all of the time.
  • 4 in 10 experienced suicidal feelings — 30% sometimes or occasionally, and 10% often or all of the time.
  • 59% reported some detrimental impact on the relationship with their partner; 2% said the relationship had ended as a result.
  • 36% felt their career had been damaged; 15% reduced their hours or left their job.
  • 63% had to pay for their own treatment, at an average of £13,750. Around 12% spent more than £30,000.

A separate 2024 analysis of 590 respondents across the UK and Ireland found that 41% met the criteria for post-traumatic stress disorder or complex PTSD on the International Trauma Questionnaire — 32% complex PTSD and 9% PTSD. The same work found that only 16.1% said a healthcare professional had discussed infertility-related trauma with them, 27.6% had support put in place, and 61.2% said aspects of the fertility care they received made the trauma worse.

Fertility Network UK is careful to note these figures reflect survey respondents rather than everyone who experiences infertility. But they are the best UK data available, and the direction is unambiguous. If you feel like this, you are in the majority of those who answered.

What makes it specifically hard

Naming the mechanics helps, because most general advice about coping does not fit this situation.

It is a grief without an object. There is no funeral for a month that did not work. Nothing is publicly recognised as lost, so nothing is publicly acknowledged, and you are expected to carry it while functioning normally.

It repeats on a schedule. Most difficult things happen once and then recede. This one rebuilds hope and removes it on a two-week cycle, indefinitely, and the arrival of a period is both a medical event and a bereavement.

It is invisible and therefore unsupported. Colleagues do not know. Friends announcing pregnancies do not know. The Fertility Network survey found only a quarter of respondents reported a supportive workplace policy, and among those who told their employer, less than half said reasonable adjustments were made.

It is expensive in a way that compounds everything else. When treatment is self-funded, every cycle carries a financial loss alongside the emotional one, and the decision to stop becomes entangled with money in a way that feels degrading.

The advice you get is often actively unhelpful. "Just relax." "You can always adopt." "At least you know you can get pregnant." NICE's actual position on stress is narrower and more useful than the folklore: stress in either or both partners can affect the relationship and is likely to reduce libido and frequency of intercourse, which can contribute to fertility problems. That is a mechanical pathway. There is no NICE recommendation telling you that worrying is preventing conception, because there is no evidence base for one.

Things that are true and not comforting

A page like this usually ends with reassurance. Some of what follows is not reassuring, and it is included because false comfort is corrosive.

Not everyone who wants a child has one. Some treatment cycles fail repeatedly and then stop being offered. Some people reach the end of what medicine can do and have to build a life around an absence they did not choose. The Fertility Network research found that those who had unsuccessful treatment reported greater distress and more frequent suicidal thoughts — the difficulty is worst precisely where hope has run out, which is where support most often withdraws.

You are also allowed to find this harder than someone whose situation looks objectively worse. Distress is not allocated by fairness. And it is possible to hold two things at once: to want this badly and to be exhausted by wanting it. Ambivalence about continuing is not disloyalty to the child you hoped for.

What actually helps, according to the people who used it

Counselling — with caveats about which kind

NICE NG257 is unusually direct here. It recommends offering counselling to people who experience fertility problems, because the problems themselves and their investigation and treatment cause psychological stress. It recommends offering it before, during and after investigation and treatment, irrespective of the outcome. And it recommends that counselling is provided by someone not directly involved in managing your fertility care — which exists so that you can say things you would not say to the person deciding your treatment.

An earlier Fertility Network survey of 865 respondents found 75% of those who had counselling found it helpful, and 73% would have liked it if it were free. Only 44% accessed it. Where it did not help, the reasons given were the wrong timing, the wrong focus, or its being a tick-box exercise required to receive treatment — useful to know in advance, because it means you can ask for counselling at the point you need it rather than accepting the clinic's slot.

Peer support, if you can get it

Half of respondents in that survey said they would have liked a local peer support group; only 20% could access one. If there is a group near you, the case for trying it is strong. If not, moderated online groups run by the charities below are the realistic substitute.

Telling a small number of people properly

Not everyone. Two or three, with specific instructions about what you need — company, or distraction, or no questions after appointments. Vague support tends to arrive as advice.

Deciding in advance what the limits are

Agreeing with your partner, while you are not mid-cycle, how many attempts and how much money, converts an open-ended ordeal into a decision you are making. It can be revised. Writing it down means each failed cycle is not also a referendum on the whole project.

Where to get help — actual services

  • Fertility Network UK — free Support Line on 01424 732361, open 10am to 4pm Monday to Friday, staffed by experienced staff (not clinicians or counsellors). They also run peer support groups and dedicated trauma support information.
  • British Infertility Counselling Association (BICA)bica.net lists accredited fertility counsellors. If you are paying for counselling, this is the register to use, because fertility-specific training makes a real difference.
  • Tommy's midwives — free helpline on 0800 0147 800, 9am to 5pm Monday to Friday, for any pregnancy or pre-pregnancy issue including mental health. The midwives are trained in bereavement support.
  • Miscarriage UK — helpline 0303 003 6464, Monday, Tuesday and Thursday 9am–4pm, Wednesday and Friday 9am–8pm, plus live chat.
  • The Ectopic Pregnancy Trust — support line 020 7096 1838, plus forums and virtual support groups.
  • NHS talking therapies — in England you can refer yourself directly, without a GP appointment, for anxiety and depression.
  • Samaritans116 123, free, 24 hours a day, every day of the year. If you are having thoughts of suicide, this is the number, and 4 in 10 people in the Fertility Network survey had those thoughts. You are not the exception.

If you are in immediate danger, contact emergency services on 999 in the UK or 911 in the US.

When to seek help

Not when it gets bad enough to qualify. The threshold that matters is whether it is affecting how you live: sleep, work, eating, whether you are avoiding people, whether the thought of another cycle produces dread rather than hope. Any of those is enough.

Seek help urgently if you are having thoughts of harming yourself, if you cannot function day to day, or if you are experiencing flashbacks, intrusive memories or numbness after a loss or a failed cycle — the PTSD finding above is here so you recognise those symptoms as something with a name and a treatment, not as weakness.

Two practical framings. First, in the UK the offer of counselling is a mandatory part of licensed fertility treatment — you can ask for it at any point, including after treatment has ended and including if it did not work. Second, if the care you received has itself made things worse, you are not imagining it: 61.2% of respondents in the 2024 research said the same. You can ask to change clinician, ask for a different point of contact, or bring someone with you to appointments.

None of this fixes the underlying problem. It is not supposed to. It is meant to make the waiting survivable, which is a lower and more honest bar than feeling better about it.

Sources

  1. The far-reaching trauma of infertility: Fertility Network UK survey Fertility Network UK, accessed
  2. Infertility-related trauma is more common than previously recognised Fertility Network UK, accessed
  3. Let down: lack of support for fertility patients before, during and after treatment Fertility Network UK, accessed
  4. Fertility problems: assessment and treatment (NG257) — Principles of care NICE, accessed
  5. Support Line Fertility Network UK, accessed
  6. Contact a Samaritan Samaritans, accessed